This Dementia Action Week (16-22 May 2022) has a theme of diagnosis, so we thought it was the perfect time to showcase a song our members created with local musician Cora Kelly to give those newly diagnosed with dementia reassurance. You can download the single today and Cora is kindly donating all proceeds to Dementia NI, to help empower local people with dementia.

The Journey gets across what it's like to live with dementia in a captivating way, with each verse representing a different stage in our members' journeys with dementia. The message of the song is clear: life still goes on following a diagnosis.

"We wanted the public to hear our voices through song in order to give others recently diagnosed some hope and so everyone could understand more about what it's like living with dementia from our perspectives," says Dementia NI member Allison Batchelor.

You can buy the brilliant The Journey today and donate to Dementia NI at the same time on ITunes or Google Play. We also have a fundraising page for the song. We hope people will continue to really get behind The Journey and encourage anyone who enjoys the song to support the work we do by downloading it!


Our member Martin Murtagh explains how the song was composed: "Cora came to our Empowerment meetings and really listened as we each told our stories about our diagnosis. Then she went away and put our words into the song. She's got a wee gift! It has me crying when I listen to it. It's very true to the experience of living with dementia and what everyone who's received a diagnosis is going through. If a person with dementia or their family listens to it, they'll know what it's about right away."

Cora, who is from Killough, County Down, has experience of supporting a loved one with a dementia diagnosis.

"My granny was diagnosed with Vascular Dementia over five years ago," says Cora. "I have seen the impact it has on individuals and the surrounding family. I am so grateful to still have my grandmother and she has never lost her amazing sense of humour! I understand how hard living with dementia is and that's why I think the members of Dementia NI are doing such an amazing job in bringing awareness to the condition."

She adds, "It has been a pleasure working with Dementia NI members throughout Northern Ireland and I have personally learned so much over the past few months. I have often come away from meeting with the members challenging my own assumptions about dementia and I’m so amazed at how Dementia NI members are still so positive and living happy and fulfilled lives.”

The Journey: lyrics

Each verse represents the various stages of our members' journeys with dementia. Verse one captures their initial thoughts following diagnosis, verse two reflects the challenges our members face and the bridge celebrates the feeling of connection that many experience within our peer support groups.


Verse 1:

I won't lie, I was terrified

When the doctor said those words

My feet went out from beneath me

Could not believe what I'd just heard

If I judged my condition

From what I saw on television

I'd give up


Chorus:

It's a slippery road but I keep my feet planted

I have the strength to hold the cards that I've been handed

If I stumble, if my feet fall or if I need some assistance

I know the journey's long but

It's worth the distance


Verse 2:

My voice is mine

I don't need someone to say what's on my mind

Though the love I have to help me

Is the best that you could find

I worry for my loved ones

'Cos the future is so unknown

But we'll all stay strong


Chorus:

It's a slippery road but I keep my feet planted

I have the strength to hold the cards that I've been handed

If I stumble, if my feet fall or if I need some assistance

I know the journey's long but

It's worth the distance


Bridge:

I found my place

I'm surrounded by faces

Who understand me

Our worries and fears

Soon disappear

After a conversation... and a warm cup of tea


Chorus:

It's a slippery road but I keep my feet planted

I have the strength to hold the cards that I've been handed

If I stumble, if my feet fall or if I need some assistance

I know the journey's long but

It's worth the distance

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